I have found the following websites of use...
About Research and Science
Behind the Headlines This is a wonderful site that explains and helps you understand the health stories that hit the headlines in the media.
NIHR is creating a health research system in which the NHS supports outstanding people in world class facilities.
This new partnership between the paper and the National Institute for health Research provides a forum for discussion along with information.
This urges everyone to get involved in improving current research and future treatment.
James Lind Alliance - The JLA help with ‘research priority setting’ especially involving people affected by a condition or illness. See Priority Setting Guidebook.
sense about science – Charitable trust that equips people to make sense of science and evidence on issues that matter to society.
About Getting Actively Involved
INVOLVE - provide information about public involvement in research with various guidance documents and advice.
People in Research Joint initiative helping people to become actively involved in research, providing information about opportunities.
North West People in Research Forum - This organisation is devoted to supporting PPI and public engagement (PE) in health research in the North West. The Shared Learning Group has a useful website, which has a lot of free resources about PPI. Much of the information is transferable to involvement in research.
Involving People - This organisation in Wales believes that 'active' involvement of members of the public leads to research that is more relevant, more reliable and more likely to be used to improve health and social care services.
Involving People in Research This Australian website has been developed to house resources such as the new Fact Sheet Series http://www.involvingpeopleinresearch.org/index.php/resources/fact-sheets
UK Clinical Ethics Network
UK Clinical Ethics Network
The main purpose of this website is to provide information for UK clinical ethics committees
UK PubMed Central - This is a free online resource for biomedical researchers
Workshop in a Box - This is a wonderful new site from the Central Commissioning Facility - well worth a look
About Participation in a Clinical Study
UK Clinical Trials Gateway - This provides easy to understand information about clinical trials running in the UK.
Your Treatment Choices - Provides information and advice about Clinical Trials in your area.
About Using Social Media in Research
Research Information Centre has produced a good guide for using social media in research
Using Twitter Guide - A London School of Economics blog
The Genetic Alliance is the national charity of patient organisations with a membership of over 130 charities supporting all those affected by genetic disorders.
Association of Medical Research Charities - (AMRC) is a membership organisation of the leading medical and health research charities in the UK.
Clinical Trials for Me a new site from AMRC and Genetics Alliance supported by Roche. See YouTube - http://www.youtube.com/watch?v=oMAMVQGEi5E
Orphanet - is a database of information on rare diseases.
Healthtalkonline - is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org.
Eurodis – Rare Diseases Europe. Interesting charter and clinical trials glossary