The presentation I am giving today is to the International Back and Neck Pain Forum 2016 taking place in Buxton, Derbyshire UK
The title for the event is one that is close to my heart and that of many other patient advocates - RESEARCH WITHOUT WALLS.
It is an ambitious aim which places the patient at the centre of the work and is orientated around improving the quality of overall health and wellbeing.
I am speaking about the role patients and the public are playing across the National Institute for Health Research (NIHR) which celebrates its 10th birthday this year.
Research without Walls very much suggests a shared endeavour - an opportunity to work together as never before.
The changes that are already taking place are demonstrated by the public’s willingness to help research, a greater expectation on clinicians and healthcare professionals coupled with the digital revolution which we are all experiencing. Charities are changing in the way they engage with patients and the public. Access to research is becoming easier and I will always return to the most basic point that much of the funding is public money - from taxes, donation, activities
This excellent article by Dr Peter Brindle @petbri @CLAHRC_West invites us to think more about working together more closely in health research and service delivery - towards a time of joined up research and co-production.
I will be talking about the NIHR Clinical Research Network and our GOALS of Talking More about Research, Making it easier for people to participate, Connecting with colleagues and using social media as well as supporting those who become involved.
NIHR provides the infrastructure for research in the NHS in England and hosts the International Clinical Trials Day. You can visit the OK to Ask page on this website to find out more about how to get involved yourself, or sign up to the free online course “Improving healthcare through clinical research” at bit.ly/CRN_MOOC to improve your understanding of clinical research.
Wendy Mitchell's blog 'WHO AM I TODAY' obviously gets a mention as does the #whywedoresearch TweetFEST organised by @ClaireW_UK and @keeling_michael
In preparing for this talk I came across @paintoolkit2 as a good example off where a patient get together with doctors to create a useful toolkit.
These are all examples where the internet is transforming the relationship between patient and doctor. You might like to read this Article on the Digital Patient by Roz Davies.
And it would be remise not to mention EUPATI and NIHR INVOLVE. I shall leave you to click on the links that take your fancy but do have a look at Cloudy with a Chance of Pain
To be surprised, to wonder,
is to begin to understand.
José Ortega y Gasset
(1883-1955, Spanish liberal philosopher and essayist