Simon Denegri, National Director for Participation and Engagement, National Institute for Health Research recently published his strategy paper Promoting a Research Active Nation with a bold ambition...
“Every citizen, by helping to design or take part in research, sharing their data or fundraising for a medical research charity, is contributing to a ‘research active’ nation focused on best health for all, through high quality research.”
The Policy objectives for the strategy include...
- Defining health outcomes that matter to people
- Helping to identify and deliver research of the highest quality
- Able to choose to take part in research
- Use the evidence on which their care is based
- Have a good research experience and recommending it to others
This echoes a number of the same objectives outlined by the Canadian Institutes for Health Research with their Strategy for Patient-Oriented Research (SPOR)
Canada appears to have much more open view and even has a Citizens Academy. Perhaps we should be making a citizens academy for research in the UK?
There is no real surprise that there are so many parallels between Canada and the UK as there has been close cooperation for years.
Simon has been across in Canada a few times in the last year. His talk on Public involvement in UK health research can be found on You Tube www.youtube.com/watch?v=L_5Xr8BbEYo + Participation des patients et du public dans la recherche en santé - www.youtube.com/watch?v=7QhNywnaA-k
I shall be adding a brief history of patient involvement in the next couple of days along an outline of the presentation.
If you have any thoughts please let me know.
Tweets will be with #capriresearch #engagepatientsMB